Political Medicine

I’ve always known we had issues with our medical system. Over specialization (lacking the ability to see the whole picture), lack up updating current data and going off of antiquated literature, inability to think ‘outside the box’ for those of us that don’t fit in them, and lack of advocacy for those suffering chronic conditions. Bias still exists in the medical field. Patients have had to advocate for themselves, educate their own doctors on conditions misunderstood or conditions most medical professionals are simply unaware of.

But I never expected that we would simply change our medical system to political medicine. Never did I expect that government, big corporations, and a portion of society would accept this change at the expense of the vulnerable and those fighting for body autonomy. Never did I expect so many to go along with it, unquestioned and spew so much hate towards those that know a medical system of ‘the greater good’ would be harmful to apply across the board and be harmful to those of us who are vulnerable.

I’m thankful there are still some good doctors and medical professionals who are standing up for body autonomy as we are not a one size fits all society. It is not possible to be without causing harm to a portion of the population.

Where do we draw the line?  We fight hard enough to be heard by uneducated doctors and society who have no idea of the health conditions that exists among us who have no understanding of the day to day of what we go through and we expect the government and big corporations and society in general can suddenly make those decisions in our best interest? And to stand up for our own bodies, health, and situations is now suddenly ‘harmful’ and ‘unethical’? How did something right become wrong so quickly?

Just Eat The Cookie and Die

It’s amazing to me how many people are willing to sacrifice others for a false sense of security, to make them feel safe. It’s even more amazing when it comes from someone in your own family who has had the time to know your life, your experience, your health issues, your story, and yet they still want you to eat the cookie that could potentially kill you, just to make them feel safe.

The cookie in question would be a cookie that you have a known allergy to, as well as a prior history of eating that cookie and having your health destroyed. Knowing there are many others like myself who have also eaten that cookie and had the same reaction and struggling just to live life with the myriad of conditions and health issues spurned by those damn cookies.

Those cookies destroyed my health. When trying to find out why, no one seemed to care. What makes my genes different? What made people like me respond in the way in which we did? There’s an obvious genetic component involved but no one wants to study the issue. Why? I can only assume, since the manufactures have no real liability, they have no real incentive to research the issue. Studies costs money. There are many many willing participants who’d love to be involved to see what makes us different so we can enjoy a safe cookie like everyone else but we’re the minority and I’ve since learned, we really don’t matter. No one wants to spend the money and they likely don’t want to admit that their cookies can cause that kind of harm in the first place.

For two decades, I’ve brought up these questions. I’ve asked medical personnel. I’ve been silenced, gaslit, and told correlation doesn’t equal causation… Let’s think about that last statement. Correlation doesn’t equal causation. Wow, can that apply to many things but in my cookie case, it almost always seems to apply. We know that only a small number of people have their injuries reported in the first place. This is fact. Even drug reactions are rarely reported, I’ve witnessed that many time. If these reactions are not being reported as they’re supposed to, then we don’t have a legitimate accurate database where we can see how many people had the exact same reaction and how that reaction grew over time. We miss the obvious, that many have had that same response and correlation is looking much more common than otherwise reported. Seeing those numbers would then, ethically prompt more research into the issue. Just like a black box warning applied to meds that were later deemed unsafe for a subset of the population. But cookie injury reporting is one of the least of all reported types of injuries. Again, is it the lack of liability? Why wouldn’t we want a safe alternative for those who can’t digest it?

In becoming injured by those infamous cookies, health declining and disabled, I have become the vulnerable. The vulnerable who can no longer eat of those cookies. It would be harmful to my health and since we don’t know what the mechanism is behind it, we have to assume it’s the entire cookie. Had they researched the issue, maybe we could have pinpointed something in it or understood the way in which my body processes those cookies but again, no one cared enough to investigate the issue. In addition, current cookies now contain an ingredient that I do have a known allergy to. And sadly, I was told by my own family member that I should eat it anyway. Aren’t they the ones who are supposed to eat the cookies to protect me? The ones who can’t? That’s the line we’ve been fed for generations yet that somehow suddenly doesn’t apply? Or is my family member just being toxic and selfish willing to sacrifice another for the impression of saving himself? That’s what catering to the ‘greater good’ does to people. It’s always at the expense of another and I just so found out, I am the other they’re willing to sacrifice. Doesn’t look good on this side of the fence.

Silent Echos

Crying a dozen tears,
collecting puddles along the way
Anguished over lost years
Waking to the same, each day

Feeling trapped, paralyzed with fear
Heavy chains pulled tight
Is there no one to really hear?
I toss and turn throughout the night

A body that won’t comply
An overwhelmed and angry mind
Struggling with the thought of goodbye
Will there be a rainbow that I find?
Or am I lost, lost, only to be left behind… DM 7/5/21

The Next School Shooter

Several years ago, a mother in my state wrote an anonymous post about her child being the next school shooter. It took a post like that for a doctor in another state to reach out and help her child. Yet no change took place in Idaho. Our mental health system here is a broken wreck, we know it, they know it, but no one is doing anything about it. It’s been years, yet here we are with the same broken system. A young girl, a 6th grader became the next school shooter. Thankfully for her, no one died. I sit here wondering what help she will truly be given and what changes won’t take place because of it.

I sit here and wonder if my child will be next.

Did you know the state of Idaho does not have ONE anger management class or sessions for our youth? Not one, so they say. My child has actually reached out and asked for help with this anger that comes out of nowhere and rages out of control. He hates it, we hate it, but how do you control it? How do you stop it from unleashing in the first place? Doctors want to throw anti-psychotic after anti-psychotic at them but it does NOTHING to help the child. My child doesn’t do well on meds. Period. We’ve tried so many of there damn drugs but not one has helped. He lives with extreme over the top anxiety and panic attacks and nothing has touched it. It took YEARS to even try a fast acting anxiety med in the first place because they were too concerned with addiction than helping my child.

So my child suffered for so long without help that it’s become out of control and beyond where it needs to be due to lack of help in the beginning when we needed it most. Addiction is more concerning to them than the actual wellbeing of your child NOW. Off label meds are used more often than medications meant for the issue to begin with.

One of the biggest issues with long term drugs is that it can weeks to months to be effective. So they trial a med, fight off the side effects, only to have it be ineffective or cause more problems only to finally stop it and trial another, and another and another, to no avail. At some point the child will refuse meds. And then rage at the worthless system he finds himself under.

The state of Idaho has no real respite for older kids. I am just now learning of one on the east side of our state yet no one had mentioned it to me before. Why don’t we have one in the most populated area of our state? There are plenty of respite ideas for those with young kids but not a damn true respite for our older teens that benefit both the child and the parents. So the government contracted with the Hay’s house. A local shelter in Boise that takes kids. Apparently, paying good money from the government of Idaho to the Hay’s house to provide the needed respite for our kids in the system. Guess what? They denied my kid.

After taking weeks to even try and get someone to call me back and then go through the application process and set up a tour. I simply got a phone call telling me they don’t take kids with autism. They also don’t take kids with health issues even though my son doesn’t have any needed equipment or really any special care beyond, let him rest if he needs to and don’t require physical activity if he’s hurting. So why are they getting funds from the government, likely from us tax payers to provide a service, ON PAPER, that they are refusing to provide? It’s funny and ironic that the court order in my kids case simply says, “keep seeking respite…” Yup, we’ll keep seeking but never find.

And they wonder why kids finally explode. They wonder why suicide rates are high and ever climbing. They wonder why kids take their aggression out as a school shooter. I wonder what help the poor girl didn’t get and how long they battled the system trying to find it before she finally snapped. So what change did this incident bring about? Likely not a damn thing.

Respite for teens should provide a safe place for teens to have both enjoyment and a break from their families while providing a break to the parents as well. If one is suffering, the other will too. So if a kid goes to a place like Hay’s house and can’t even keep his phone or certain personal affects while there, please explain how that is not much different from detention? So even if he did get accepted, I can only imagine the anxiety in the back of my mind worrying about how frustrated my kid would be not having access to his basic personal affects while supposedly getting a break from the household… I honestly don’t think that would provide a real sense of relief, ie, respite. But it would be better than nothing…. until we can one day get real services and respite for our teens. If it’s not too late.

I’m so disgruntled by our system, our state, our health care. They are admittedly reactive and not preventative. But even their reactive measures are subpar, always shoving a square peg into a round hole and not getting results while continuing to try.

I would love to start a non profit and create a teen respite center in our state. A center with input from the very teens who would utilize it. But how do I do that? I’m just a disabled mom with ideas, a lack of education in that area, and very little energy to walk on my two legs. But we need it. We need it desperately as do thousands of other kids in our state who are suffering like my kid is just like the parents who struggle and need that break but are too afraid to ask for help or have asked but haven’t been heard. My ideas are endless on this program I’d like to create.

I’d also like to fix the broken juvenile justice/mental health system in our state. A REAL solution that would benefit our children that really does look a lot like common sense but our system is stagnant, apparently slow to change and how does one be the voice of change? I HAVE A SOLUTION!! But my voice travels out and fades away and doesn’t reach the ears of those who might actually be willing to make a difference. How can I be heard? How can I share my ideas that would help our kids in at least two areas where our state has failed? I need legs. I need someone to be those legs to reach the people necessary and then convince them to simply start by listening. Listen to my proposal and lets start working on solutions rather than wait till something even more drastic takes place that finally gets someone’s attention.

Will my kid be next?

I Understand..

There are so many issues that divide our society. From my own personal journey, I can truly understand both sides of many issues. There really is no black or white but various shades of gray that make up our feelings and frustrations due to our experiences in life. Those stuck on either side of the black/white issue, simply have not experienced or walked in our shoes. They are blinded by their own journeys in life. That does not make them wrong, it makes them simply ignorant of the experiences of others and unable to see how others got to the place in which they view their side of things.

Our Broken System

Our system is set up for failure. It’s no wonder why we have such a high suicide rate in our state and in our country. From lack of services to stigma to getting healthcare to laws that make mental health a crime, people are not getting the help they need and our state will continue to climb with rising suicide numbers and public meltdowns and catastrophes.

When a person can actually understand why someone would enter a VA hospital and blow his brains out or shoot up a business, then you can understand the chaos our system creates and does very little to change things.

You can’t be honest with healthcare workers. Honesty can add more trouble, red tape, and a host of other problems. Suicidal? Let’s take your guns. Now we have the added stress of being unable to protect ourselves. Let’s take their meds. Now we have to suffer in even more pain. Let’s take their…. quit trying to control someone else’s life. If they truly want to die, they will find a way to do so.

There are no immediate services. I need help now. I need a good counselor now. I need respite now. I need mentoring now. Months of back and forth paperwork, wait lists, no shows…. Try being disabled and having to keep up with the back and forth, the paperwork, the frustrations and not understanding the process. No real help there even when you cry out for help because it doesn’t make sense and no progress is being made.

They’re hiring mental health service providers straight out of high school now. Very little if any training, no experience, and no real passion or drive to help kids who need it. Even the experienced ones assume cases are all alike and apply the same tools and jargon regardless of if it fits the client or not. Stuff the square peg into the round hole… And then basically roll their eyes in frustration when it doesn’t fit. Must be our fault.

It’s truly sad when a law has to be passed for mental health, in particular ptsd, to be covered by workers comp, in a career field that sees a lot of violence and death. How is that even a thing? How was that not covered? How in the hell can they think it’s ok to penalize someone for needing a mental health break? This is the stigma that our world suffers from. We must be strong with all things all the time. It’s not ok to crack when your world falls apart and your child shatters. Smile, nod your head, we’re fine.

Punishing a person criminally for having a mental health crisis. Yes, you read that right. It’s a crime in Idaho. What you say or do can be used against you. How does that make life easier on you? How does that truly help? Now you have a record. Now you’re court ordered to do things and if you’re not mentally right yet, one little slip up adds more charges. Now how does that help someone get better?

We have proven services that can help a person in crisis but insurance won’t cover those services. What they will cover has long waits, poor quality, and not enough staffing. If you don’t have money, you don’t get the best care. What kind of message does that send?

Let’s talk about drug use since it can go hand in hand with mental health. Yet, in our country, we make drug use a crime rather than put it where it needs to be, mental health if it’s beyond simple social use. Again, if you’re rich and high up in the political system, it’s ok, we’ll just cover it up, but the lower end of the totem pole, well, you have to pay society for your crime. And since it’s a crime, have you used any substance before? Of course not. Who the hell will be truly honest? It’s a crime. So how does one get help? It’s a broken system.

If you admit you use drugs, it follows you in your record then the stigma is attached which shows in the bias for any future treatment in the medical system and in the world. If you have mental health issues (sans drug use) it too gets attached to the record that follows you, full of bias in future treatment and lack of services to help you get back on level ground. It’s a broken system.

Should mental health not be one of the most important aspects of life to take care of? Do we not want a productive healthy society? What are the drawbacks to that? Why keep the system broken and people down? It costs more in the long run if they allow people to fall apart and stay there. It costs more in the long run if we don’t provide appropriate services to kids in need. It costs more in the long run if we don’t provide care giver help to families struggling. Why wait till it’s too late, or they’re so bad off it takes that much longer to possibly recover or they completely and absolutely snap? Why are there so many good services out there out of reach to people?

Between our medical system, mental health, insurance and the criminal justice system, we have allowed these broken systems to continue for too long without real fixes that actually provide quality care and real help to those who need it. So many complain about it but very little is getting done. Just my 2 cents….

We should never fear calling the Police during a crisis… Part 1: My Journey with Ada County Juvenile Justice and Meridian Police Dept.

We should never fear calling the police during a mental health crisis. But that is exactly what I now fear. I will never utilize there service that we pay for, ever again, no matter how bad it gets. They have failed me. The Ada County Juvenile Justice Department has lied to me and they are not there to help your children as they are proving that.

Around September of last year (2020), my son had a complete and utter meltdown. Covid has been rough on our kids, especially those with autism or other mental health issues. Due to my child’s depression, we have a crisis plan in the event it is needed. I’ve never needed it before. That night, I did. 

I simply needed the police or ambulance to transport my child to the ER. My child had volunteered to get help but when he found out they needed blood work, he lost it. He hates needles, it’s part of his autism anxiety. I was afraid of him hurting HIMSELF, so I made that call. My son did NOT want to go to the ER and I alerted the officers of his diagnoses and his fear and that he was not willing. They said they may have to restrain him if he refused to cooperate. There was no mention of anything beyond that. My son was transported to the hospital in restraints. 

One month later I received a call. My son had a warrant out for his arrest. He was being charged with a felony assault on a police officer and a misdemeanor resisting charge.  They are charging him for ‘attempting to bite’ the officer even though he didn’t cause any harm, he’s a small kid and they had him on the ground putting a body wrap around him. 

Though I managed to have the warrant removed AND the prosecutor was willing to drop the felony, his supervisor would not let him. We have trial in April. They said they would drop the felony if we pled to the misdemeanor. This to me seems like blackmail. Why should we plead guilty to any crime when we simply needed help during a mental health crisis? They said they charge kids to make sure they’re getting the proper help they need… yet not one phone call to see how he is doing. Not one phone call to share any information regarding services. They didn’t even ask if he was receiving any services!  How is this helping my son?  If they were really seeking to only charge to help, then why wouldn’t the supervisor allow the prosecutor to drop the heavier charge and work with the other charge that remains? Again, this shows they don’t have his mental health in mind but are seeking to punish my child and for a crime that could follow him for the rest of his life and for what??? For calling 911 to help us get him to the hospital… Never again.

I’m a disabled veteran who is in the process of seeking caregiver support due to my disabling condition. Stress exacerbates my health issues. This has certainly put a lot of stress on my shoulders and added more to our plates when it wasn’t even necessary. Not to mention my son could have a felony record for life if the judge determines he’s guilty.  There are no laws to protect my son. Where’s the common sense?