As a disabled family, getting out of the home is a rare event. We’re isolated, stuck behind these 4 walls and events in the community take a lot of prep and planning and even then, there’s no guarantee of getting out, if it’s me attending, as I never know if it’s a migraine day, or my dysautonomia is so bad I can’t be upright. I typically have my wheelchair for events like concerts since I can’t stand for very long or walk far but my husband wasn’t able to attend so I couldn’t bring it. Winter typically keeps me in bed as the cold affects my ability to function quite a bit. I have kids on the spectrum who also suffer from my health issues. Everything takes careful planning so it’s rare we leave the home to do fun things.
On 12/14, we had a super special event planned for me and my son. For once, it was on a good day. We were both over the moon to attend this event. But an incident happed out in the community, the Ford Idaho Center in Nampa, and an injustice occurred. I am totally confused on what warranted the kind of incident and treatment that took place. An incident that not only traumatized ME but my child as well. We paid over $1600 which is a HUGE deal to us for my son and I to go to the Snoop Dogg concert AND have the after party where he was putting on a private show with food, music, a meet and greet, over $200 in loot and other gear. THAT was a huge deal to us both and we not only got kicked out of the concert but lost out on meeting him, getting our PAID for loot, and the entire experience for something that I don’t even know why.
I’ve been trying to find out WHY we were kicked out and no one has responded to our emails. This was our respite night. It seems like such a small thing to abled people but when you’re disabled and isolated, any event like this is a major deal for us. Had we hurt someone or threated security or was violent, then we’d absolutely deserve the loss of the event. The problem is that we did none of those things and at the time we were asked to leave, we were sitting together and Snoop Dogg had just come out so I don’t understand what we did wrong. My son has taken on all the guilt, the pain, the shame.
He had to witness me have a mental health breakdown outside the venue which I don’t ever do but I was treated so badly, I’m disabled and the cold affects my neuromuscular condition and my phone was in the venue which they wouldn’t let me find and it’s my assistive device with my whole life on there, alarms, appointments, calendar, my phone numbers, I can’t remember those type of things and I have to have that to manage.
The MAV guy refused to let me use the facilities (bathroom) and told me to, “go pull your pants down outside and pee.” Who says that? I explained my disability and they still refused to accommodate. I showed them my alert bracelets. They didn’t care. My son is in such an awful way right now and he has pretty severe depression so this just adds a whole other layer to things and he blames himself as he already thinks he’s a failure and he’s taken it all on himself.
There we were enjoying ourselves then everything gone, just like that, with no explanation, no recourse, no justice, and no return of the money I paid which was a huge amount to make this happen. No items that I paid for for both of us to receive that was saved for the end of the event so we didn’t have to hold it while the show was in process and no way to obtain what we paid for, no way to ever get back that once in a lifetime experience and no way to fix the damage that’s been done to us.
Why? Why did this happen? This was our night of respite. This was our chance to get out of these 4 walls that have isolated us for so long. And that got taken from us. I have written to the venue asking for answers. No one will write me back. How can one man (MAV security) make a call that effects a person’s life without any explanation, any way to defend themselves or anyway to stop an injustice from happening. How can that one man have so much control while we sit by helpless and mocked for my own disability? How can a person who is disabled be treated in a such a manor as I was without empathy, compassion, or regulations in place to keep someone in my condition from experiencing a situation like this that caused us harm?
What recourse do we have? How do we stop this from happening to someone else? How do we make sure that disabled people planning a special night out don’t have this happen to them? How do we get justice or compensation for our loss? I even wrote the venue prior about my disability checking on things and sharing how excited we were to attend. Why am I sharing this? To share what it’s like to live a disabled life. To share how very difficult it is to attend events out in the community. To share how something like this impacts our lives when you experience a devastation like this. To see if anyone has suggestions and a way for justice to prevail. To see how we can fix the system so people like us have the respite we so desperately need without the fear of discrimination or fear of having that taken in a heartbeat without a way of defending ourselves.