The hypocrisy and double standards of Bachelor Nation

I grew up watching The Bachelor, Bachelorette and the spin off shows, now Bachelor in Paradise. It’s one of the few reality shows I enjoy watching, besides Survivor, my all time favorite show. I love watching the love story unfold, the personalities coming together to compete for the heart of the man or woman lucky enough to be chosen to find their special person. A large part of my interest is that I like to read people. To read the emotions and feelings they’re projecting and picking my four favorites I believe will make it to the end and then to pick the one I think will ultimately win the heart of the contestant. Am I right? Did my analysis come true?

I’m usually very good at the ‘art of reading people.’ Seeing through their persona to who they really are inside. To be able to see through deception and lies and see the truths behind their eyes. I’m no mind reader, but I can read emotions. Some would call that empathic or an empath, if you believe in all that.  So anyway, I really enjoy watching the show and seeing if I’m right, if I made the right picks and if they get together in the end. Did they get their happily ever after?

The show has recently changed. Did they get new producers? It went from keeping it mostly classy to a lot of trashy with scripted ‘characters’ and producer picks to purposefully spin things up and create drama. The show was fine the way it was. I’m not liking this new direction. I’m not the only one to feel that way. Yes, I understand ratings, but it’s going over the top in spinning things up and it’s feeling more like a soap opera then a reality love story. A little drama can be fun. Better them than me, right? But having to purposefully create a villain with scripted drama in every show is really ruining the original intent of the show. Even the spin off show is different, where prior contestants get together and co-mingle, getting a chance to meet the other contestants to see if they might have a chance at finding love. Now, there are hook ups before they even get together and scripted drama once again, to sway the minds of people and add their own political agenda’s into the mix. Creating cue words to be spoken over and over by the various contestants and leaking into our society through all the fans glued to the show.

I also feel it’s creating dividing lines in our nation of viewers. These scripted dramas put out for all to see with political undertones and ideas that not all viewers are ready to deal with or want. It’s one thing to allow the characters to evolve with everyday life put out for all to see, but it’s a whole other feel with ‘forced narration’ when purposefully spun and set up to create these issues and situations for our nation to debate on social media. One thing I am seeing over and over is the double standards that are alive and well in our society. Bullying is real and still alive and kicking. I also see hypocrisy.

A person’s reputation can be made or broken on this show.  These are real people with real lives and I think sometimes the fans forget about this. The cattiness is real. The pain is real for those who’s reputations are put on the line due to backstabbing and manipulation, lies and ‘drama’. I lost respect for the show, the producers, and several of the cast members after watching this season’s Bachelor in Paradise. Like I said, a little drama is fun, but the downright vicious behavior of some of the leads are absolutely disgusting and disgraceful.

It’s no longer about finding love and relationships but about digging up the most dirt and smearing each other on national TV for all to see and a nation of fans to debate and be divided over. A perfect example is Blake. Blake was one of my favorites as a contestant on The Bachelorette. I rooted for him! He’s sweet and likable, different, but endearing. I know sudden fame can easily get to a persons head. Attention, after possibly lacking it in life, can really be uplifting and exciting and provide opportunities that would otherwise, have never happened. I feel this is what happened to Blake. He’s young, single, living the dream with multiple girls interested and vying for his attention.

Being a simple fan, I can only go off of the information provided, using my inner senses to create the story and understand the situation. He dated one of the ladies from the show. He also chatted with other ladies on social media, hooking up with each other at various get togethers, some producer created and others on his own, just like any of the other contestants.  It’s what they do. Living up their moments in the spotlight and getting together for the parties and obligations as they all do. The relationship with the girl I mentioned, didn’t work out. They parted as friends. Friends with occasional benefits. Again, he’s single, his choice. From what I understand, he had his eyes on one of the future contestants of the, then, upcoming Bachelor in Paradise season. Again, I’m reading that he’s not the only one to start chatting with future contestants to see if they might want to hook up on the show. The other girl he was chatting with, who I call C girl, was very interested in Blake. That seems quite clear to all. She apparently wanted a relationship with him and based on the information provided, he didn’t. He did seem very friendly and chatty with her, as is his right.

There was a get together at ‘stage coach’ where many of the contestants attended a country music festival.  His friend with benefits showed up and they took advantage of their time together. As consenting single adults. Both of their choices. But then C-girl wanted to get together with Blake and apparently he said no. Based on the text messages that came out later, C girl wanted a straight ‘hook up’ no strings attached as implied in the conversation revealed on social media. She said, simply sex. He said, ‘That’s what they all say.” She got an uber to his room after he declined. She chose to show up at his room and she chose to ‘coerce’ him into sex.  Yes, he too had that choice. They both were drinking and drinks lower their inhibitions and shit happens sometimes.  Shit definitely happened this time.  His only mistake, from how I see it, is in not being adement about his no. Let’s put the shoes on another’s feet and flip the situation around. Can you imagine the backlash a man would get if he weaseled his way into a girls room and turned her no into a yes for ‘just sex’? The backlash would be atrocious with many thinking he would be taking advantage of her. But this was a female, rather than a male. Woman’s rights and all….

Again, two single drunkenly consenting adults. It happens. He made a mistake and he told her so. It never should have happened, but it did.  A lot of us have been there. We move on. The issue is that C girl went on national TV and purposely created drama with outright lies and viciousness to smear this guys name. Rather than go on the show to find love and focus on herself, she wasted multiple days spreading rumor and lies, stiring up the drama and making Bachelor nation turn against this guy, ruining his reputation for all to see. Remember, these are real people, and fans can be crazy.  As Hannah B stated on the Bachelorette, a comment I agree with, (but not in reference to Blake), she should have simply, “Stayed in her lane!” Instead she drove all over someone else’s lane, creating drama and spite, ultimately making her look like a desperate drama queen who felt like a woman scorned because most likely, she lied again, when she said, “just sex!”

Knowing how women can be, Blake was very right when he said, “That’s what they all say.” Some women are conniving enough to push themselves into the bed in hopes of keeping a man who has no real interest. A lot of us have been there and can relate but to lie on national TV because her plans didn’t work out for her was wrong on so many levels, it left a bad taste in my mouth and a disdain for the producers who ‘set it up’ for her to smear his name and try and ruin his reputation. I personally, applaud him for releasing the text messages. What else is a man to do? We all know that if he simply denied the accusations, no one would have believed him. I know he didn’t want to smear her name but he really was left with little choice if he wanted to get the backlash off of him and his family. I don’t blame him. I would have done the same. This isn’t small town drama, this is big time.

So the divided nation is up in arms over him sleeping with two different girls two nights in a row.  Remember, one was a friend with benefits, knowing he’s free to do as he pleases as he’s still a single man. The other was told no yet showed up at his door in her drunken state in hopes of pushing him into more than he bargained for. And yet, his eyes were on another, in hopes of winning her heart on Bachelor in Paradise. Oh the webs we weave. I just don’t understand how it’s ok to flat our lie to both Blake and to the nation of viewers but it’s not ok to be a single adult, playing the field, openly, while looking for love. Don’t a lot of them hook up off the show? Pot, meet Kettle.

The saddest thing I think I saw during one of the episodes was C girl throwing herself on Cam, only to get a rose, using him and discarding him the moment another man walked down those stairs. Poor Cam. She should have focused on herself and finding love rather than wasting the first few days bashing Blake. All she was left with to chose from was a Cam, knowing she only wanted a rose when he really wanted so much more. Then she went on to say how excited she was to meet Mike and was chosen for that date, which made me cringe. Poor Mike. The moment Dean walked down those stairs, suddenly, she’s all Dean, goodbye Mike, as she tosses aside another man to get her way with someone else. Apparently, their still together if I read that spoiler right. Funny that it happened to be Christina’s ex, since after all, it was Christina who dated Blake and was friends with benefits. It seems to me she may simply like going after her competitions ex’s. She sure did stir the pot on The Bachelor when sharing the spot like with Hannah.

So now Bachelor nation is divided on Blake with hate still spewing out of the mouths of the fans and I’m just disgusted with the whole thing. Fans are angry he was ‘hooking up’ outside the show, again, something that happens with many of them, and yes, of course, mad about the two girls, two nights apart, a mistake he admitted so let him move on from that. And that leads me to Demi. I have a like/dislike view of Demi. There are moments she’s hilarious and fun to watch and other moments she’s the epitome of mean girls. I don’t like that side of her. Demi is bi. No big deal, her choice. She went on the show to find love like the rest of them, right? Apparently, not so right. She has a girlfriend back home while she ‘figures things out’ and all Bachelor Nation can see is, “Awe, she’s coming out on TV.” The political agenda is strong. I don’t care that she’s coming out on TV, good for her, not the problem. I have a problem with the producers knowing she has a lady back home and allowing her on the show anyway, something that’s not suppose to be allowed, and yet the exception is made to drive home a political point, highly scripted and forced rather than allowing love to just happen.  And yet, no one is seeing a double standard here in regards to the girlfriend back home?

Let’s pretend for a moment that we don’t know who were talking about. Girl meets guy, they are super into each other. She spends a week putting all her eggs into one basket, totally digging the guy and giving him hope. He digs her back. After feelings have been developed, she suddenly confesses to having a ‘boyfriend’ back home that she’s still ‘trying to sort out.’ Bachelor nation would be going wild with the hate about now.

Switch it up. Guy meets girl. He spends all his time with this girl who really digs him. They are invested. He then tells her he has to be honest, that there’s a girl back home he’s been seeing and he’s not sure where his heart is….  Again, Bachelor nation would be up in arms, defending this girl and bashing this guy for even going on the show to begin with. You don’t go on the show to figure out if the person back home is right for you or not. You go there to find love with the contestants on the show!  But no, double standards and all that. Just because it’s a girl she has back home, somehow makes this right? To reiterate, I’m not bashing her for being bi. I’m not bashing her for wanting an open with relationship with multiple people.  If they are consenting, it’s their business, not mine. I have a problem with her going on to begin with. For not being straight up to begin with. For the producers creating a political show, purposely staging the drama to further their views, changing the original intent of the show and breaking their own rules to do so. Anyone else would have been outed. But because of the LGBTQ movement and producers wanting the show to go in a more liberal direction rather than letting it happen on it’s own, they allowed the rules to be broken and this double standard to exist. That’s my issue.

Didn’t Demi out a contestant on the Bachelorette recently for having a girl back home? Pot, meet kettle. Didn’t she vigorously ridicule Blake for having sex with more than one woman in a weekend even though he was open and single? Even more vulgar and classless was the comment she made on social media to another contestant who called out the hypocrisy. She involved his wife. We don’t go there. If you have a problem with someone’s free speech and viewpoint, it’s crossing the line to then viciously comment about the person’s family. I completely lost respect for her at this point. I might enjoy her funny banter with Jordan, but I can no longer look at her as a future lead to the show. She might want to work on that anger issue.

And talk about mean girls, another episode that seriously disgusted me was the airing of ‘mean girls’ when Blake injured his foot. To watch three grown ass adults completely ridicule this man and be ‘happy’ he got hurt, is just so wrong on so many levels. How is this cool? How is ok to see someone really hurting and to laugh and think it’s the funniest thing? I guess empathy is being lost in our new generation. I thought bullying was something we’re trying to speak out about and stop.  But no, due to catty women and notorious gossiping and lies, it somehow makes it right to kick a man when he’s down. Yes, let’s applaud that. Let’s glorify it and make it cool again. SMH. And Tayshia, I really liked you. I did. You lost my respect when you joined ‘mean girls’ for that catty bashing fest. I thought you were better than that. I guess I was wrong.

The point of the show is meeting people and finding love. To watch people’s love stories unfold and relationships form. The direction has changed and it’s more about catty drama and scripted set ups that leave a bad taste in my mouth. Seems the producers rather make people look bad, highlight bad behavior, and push the drama when these really are, real lives and reputations at stake. I know these people chose to be on TV and put their lives out there for all to see and judge. And yes, a lot of mistakes are made and people grow from them. Sometimes the attention can get to someone’s head and they get lost in the notoriety and attention from the show. It can happen to any of us. We’re human. But never is it ok to purposely lie on national TV to smear a mans reputation. Never is it ok to purposely mock and make fun of a man, especially while he’s ok. It’s never ok to throw stones when you yourself live in a glass house. How can hypocrisy and double standards exist on this level and not get called out? Or if you do, you get bashed for it. As our world is changing and people are advocating more for acceptance and equality and being treated with respect, we need to lead by example. It’s easier to sway someone with honey than it is with vinegar. We need to take a good hard look at ourselves and reevaluate how we judge another. Switch it up. If the shoes were flipped and it’s ok in reversed roles, then maybe we shouldn’t be bashing so much. If those shoes are on the other feet and that behavior would be atrocious, why justify it and glorify it? People really need to think before they speak. They really need to evaluate a situation before they openly judge and chose a side. Remember, there’s also two sides to every situation and somewhere in the middle, is the truth. Allow both sides to speak before jumping to conclusion. You might end up with egg on your face when you realize, the ‘truth’ wasn’t quite how it was relayed.

Bachelor needs to get back to it’s roots, the new direction isn’t enjoyable anymore. Yes, I can simply turn the channel, but like anyone else, I’ll share my thoughts before I do.

 

 

Frustrated Ramblings once again..

I’m tired of dying every day and being uncomfortable in my own skin. Of watching the light fade from my children’s eyes as another mention of “not right now” whispers through their ears and the ensuing frustration and defeat that washes upon their faces… my kids need me now. My hubby needs me now. My mother needs me now. My family needs me now. Tomorrow might not get here and time flies, moments pass, needs go unfulfilled looking for outlets and something to fill the void from avenues best left discarded.

I remember those times. My children are there now and yet I’m here, I see, I know, but I’m not present and I see this being fulfilled while my body falls apart and my mind wants to spiral. To be so dependent on a stinking little pill to wash away the pain and fatigue yet such controversy on something so tiny that gives me life in a way few will understand. No high needed or received, just relief, blessed relief from the torture my body inflicts upon me. Some days, not near enough,  leaving me so despondent, I rather wither away and free my family from the burden I feel I’ve become.

The negative thoughts and heavy weights weighing them down like a chain around their necks in a sinking ship lost at sea. To free them. To free myself. To put an end to the drain on this life and allow healing to begin and forward movement on their own journeys this life will bring. May they never be saddled with these illnesses that grip me so tightly, squeezing the life out of me. But it’s heritable. It’s the gift that never seems to end. One generation to the next. My burden, my cross to bear laid upon the shoulders of my tender children and the guilt that consumes me because of it. My fault.

Stages of Grief… A Rare Disease

After all these years.. So many years.. I’ve fought to be believed. I’ve fought for answers to what I believe is slowly killing me. Always blamed on my conditions that are not progressive, that don’t cause the symptoms that were bothering me most. Always told my blood looks good and there was nothing wrong with me. But my blood doesn’t always look good and yet they say otherwise.

I’ve been told I’m just overly anxious. I’ve been told I’m simply focusing on it too much and if I distract myself, I’ll feel better. I’ve been told it’s all in my head. Not even just by medical professionals, the people we’re supposed to trust and turn to for guidance, diagnoses, and direction but also by family of all people who should have my back the most. Being called a hypochondriac, always thinking I’m dying or I have this or that. Being told I’m faking. Being told I’m scamming the system. Having others talk about me behind my back instead of coming together to support and help me. That’s very damaging.

Now imagine going through that for so many years. So many years the damage that builds up inside. PTSD from seeking help and being cast aside. Questioning your own sanity and your own self asking if it’s truly possible I was simply imagining the torment my body is going through. You can not imagine the hell my mind was put through. You simply can not imagine… unless you too have been through it.

And then one day, 22 years later. #22 for those in the know. TWENTY TWO YEARS later I get some answers. It’s not in my head. It’s not fake. It’s not anxiety, somatic symptom disorder, being overly anxious, a hypochondriac, a scammer of the system, or attention seeker. I have a REAL DISEASE. Not only a real disease but a super rare disease. About 1 in 200,000 people. Not only a rare disease but a debilitating disease. Not only a debilitating disease but a fatal disease. I have a REAL disease. And it pains me even to say that knowing many suffer from fibro and ME/CFS just like I do but we are not treated like patients with a real disease or taken seriously when we’re falling apart and suffering in so much pain and disability. They are real too, likely a collection to explain a disease simply being underdiagnosed and ignored when basic labs are normal because doctors don’t know how to look beyond the narrow box in which they seek to fit everyone.

I find myself going through the stages of grief. You’d think I’d feel elated. Vindicated, justice at last but oddly enough, I find myself soaked in grief, in shock, anger and bitterness over all the time wasted. All the time being put through hell, being bashed, emotionally abused, and mistreated and allowed to progress so badly there is no coming back from this. My body is damaged. Had they simply listened when I first complained. Had they only helped me when I told them that exertion is making me more ill, that I needed help! Both medically and at home as I am dying and I feel it in every cell of my body but no help came. Because they didn’t believe. On top of that insurance and the VA rules are so contradictory and on paper offer so much of what people need but they dangle it on a string above our heads but simply out of reach of us.

And if I do ever finally get granted the funds I need to pay for the help I’ve been asking for, do you really think I’d turn around and pay those who’ve denied me the help I’ve been asking for all this time but never truly given it? Only to help when paid? I rather hire a stranger off the street. The pain is so deep. How do I ever recover from that? I want to look each person in the eye who ever denied me, gaslighted me, and blamed mental health and tell them how truly ignorant they are, how truly wrong they were. They are a danger to others if they ever think it’s ok to allow someone to suffer as much as I have suffered and not do their jobs and help me.

I’m still bouncing between shock, grief, and anger while I process the news I’ve been given. To validate the symptoms I’ve been battling for so long, the progression, the pain… I’ve been broken down mentally by the exhaustion of it all, to the point that simple stress causes paralysis and pain. Apparently, that’s a real thing with not only my disease but other diseases that affect the brain as well. So if I tell you that I don’t need the stress in my life, I don’t want to argue or waste my time on the stupid shit and you choose to continue it, you obviously do not care for my health and wellbeing. You are part of the problem. You are part of the progression of my disease.

If you truly cared, don’t you think you’d ask me questions about what I’m dealing with? Wouldn’t you want to know more about the disease I’ve been finally diagnosed with after twenty two years? Wouldn’t you be shocked with me that my disease can be fatal and my numbers cut short? Where is your compassion and concern? How about the fear of whether I’ve passed this down to my own children?! Something that literally paralyzes me and keeps me up at night as I wait this slow snails pace of a medical system to get my children tested so we know what our future holds. I’d take it all from them if I could.

How can I not feel the depths of despair and depression with everything I’m going through right now? That’s a tough pill for anyone to swallow. All I feel is loss. I don’t want to swallow this pill. I’m tired of pills. I’m just very tired.

It’s Fatal… What?!

It’s mind blowing to know

I have a fatal disease

Without treatment starting

Get it started, please!

Even with treatment

Some don’t respond

And many still progress

That’s not treatment, that’s wrong!

The bigger fear

Will my kids have these genes?

The wait to find out…

They have symptoms, it seems

I told them I was dying

I feel it inside

Too long they dismissed me

I’ve progressed on this ride

Hopeful the treatment

Might stop some decline

But get me in to that center

It’s not your life, it’s mine!

The wait for their results

It’s like standing still

Life in slow motion

Progressively ill

No moving forward

Till we sort this all out

Then maybe I’ll rest

No more questions or doubt

Try to enjoy what’s left

Of this crippled life

Just please not my children

That’s my mental strife.

Dianne MacKay 4/26/2022

22 Years…. 22 Years

                                        22 Years… 22 Years…

22 years I suffered

22 years I cried

22 years I asked for help

Instead, I was pushed aside.

All I wanted was answers

Why was this happening to me?

My entire life flipped upside down

And few opened their eyes to see.

They spent their time full of gossip

Whispering behind my back

Telling each other I was faking

Overly dramatic hypochondriac.

The toxic poison slipped from their lips

Touching those listening ears

Twisting others minds against me

Being wrongly judged by family and peers.

The medical system was no help

They never looked outside the norm

It’s impossible you have something rare

It’s all in your head, now please conform!

It further perpetuated the stigma

Leaving me feeling insecure

Something is definitely not right inside

But it’s not my mind, I was sure!

My body feeling weaker

Losing strength day by day

Pain increasing in my legs

Forgetting what I want to say

My entire life is not the same

Dreams gone up in smoke

My goals, my hobbies, my career

Swallowed by this invisible cloak

Then one day, a simple test

One beyond the norm

Results came in, abnormal

My mind in shocking form

I have not one but two

Rare diseases that were found

It finally all makes sense

My theories were all sound.

Vindication for all those years of hell

I simply told you so

But you refused to listen or even care

How do you feel now that you know?

Do you feel the shame, the guilt inside

The pain for what you’ve said?

Or will you simply ignore the elephant in the room

Refusing to acknowledge what you led.

Will the doctors now take special care

And truly listen to what I feel?

They can no longer blame my anxious mind

This rare disease is very real.

Swimming in emotions

Shock, fear, and awe

Making new life adjustments

Due to that genetic flaw

My life more fragile than I even thought

Every system can be affected

Prognosis unknown weighing my thoughts

This one truly was unexpected

Have I robbed my children of their lives as well?

Praying they won’t end up like me.

Lots of upcoming tests, more answers

I guess I’ll just wait and see.

The pain of those fears running deep

My thoughts heavily weighed down.

The emotions from 22 years released

Holding tight, so I don’t drown.

                                                                      Dianne MacKay 4/14/2022

Take Me To Death’s Door

Take me to deaths door

There’s no pretending anymore

Pretenses melt away

There may not be another day

As I hold your hand to take you through

The uncertainty, fear, emotions ensue

Scared inside, feeling blue

By your side, I’ll be with you.

The past lies dormant

Like it should

Life’s difficulties and challenges

Forgotten where they stood

These moments, raw

Unfettered truth be told

Compassion and love

My heart does hold

As I hold your hand

Your journey is near

Not alone for your transition

When it may appear

The loss already stinging

My heart filled with pain

To know you’re saying goodbye

To never see you again

Hopes and dreams

Ideas gone awry

Plans dissipate

Loved ones die

Dianne MacKay 3/2022 (I hate Cancer)

The Years Go By… Rare Disease

                                        The Years Go By…..

I see a doctor,

I’m in pain

You look fine

Let’s try again

They run some tests

The labs look good

You’re in perfect health

But I don’t feel as I should

Can we look some more?

Somethings not right.

It’s probably just anxiety.

And thus begins my fight.

My mind is fine

It’s my body that’s broke

You made up your mind

Before I even spoke

There’s plenty of tests

That have never been run

You ran basic labs

Assumed nothing else can be done

So off I’m sent

Specialists galore

Once again basic labs

Not much to explore

You’ve checked off the norm

But I don’t fit in a box

See mental health

You’ll heal with those talks

Mental health said see Neuro

I’ve been there before

Pushed back in the box

Then shoved out the door

No one will listen

Somethings not right

It’s slowly progressive

I’m losing this fight

You’ve had ‘extensive tests’

And which would that be?

Only basic panels

No in-depth testing for me.

There’s mito, myopathy

And dystrophy

You don’t present like the norm

What norm? Can’t you see?

Adult onset is different

It’s misunderstood

You assume we should fit

We would if we could.

The literature’s outdated

The training is slim

No time to read studies

Let’s just blame them.

The kids showing signs

The same as me

It’s all in my head?

How can that be?

There are so many tests

Yet to be done

I’ve asked many times

You think this is fun?

This is my life

It’s falling apart

You see mere moments

But not from the start.

I use to keep my house

Everything in order

Now it’s collecting dust

Feeling like a hoarder

I had meals on the table

The neighborhood mom

Now I struggle to stay upright

I’m losing my calm

I don’t build endurance

My muscles fatigue quick

Weakness is present

My body feels sick

My kidneys leak protein

My gut won’t absorb fats

Tachycardia is present

Low blood pressure my stats.

My stomach shows bleeding

Esophagus gets stuck

Small bowels with rare findings

Now sort through this muck!

I want answers for my health

I should have that right

This is the life that I live

This should not be a fight

Appointments take months

Just to be seen

Some specialist’s years out

The wait in between

The process is slow

It does no good

Healthcare’s messed up

It’s not as it should

Where are the centers?

For a comprehensive exam

With doctors of all specialties

Rare disorders their plan

Don’t judge a book by its cover

They say

Yet you’re doing just that

And I’m left to pay

I’m angry, I’m hurting

My life up in smoke

Disabled and broken

Pulled down by this yoke

I feel the progression

Slowly take hold

My limbs will lock up

If I’m feeling cold

Repetition paralysis

Also exists

There’s testing for that

I will insist!

Scoliosis, kyphosis,

A pelvic tilt

Can’t support my posture

My body will wilt.

Migraines, brain lesions

Double vision as well

This is my nightmare

I’m living in hell

Early onset cataracs

Bad vision at night

Super dry eyes

Surgery I might

Scaring in the lungs

Mitral valve prolapse

Shakey jelly legs

Ready to collapse

Chronic high cholesterol

Yet no weight on my frame

Plaque calcified in my arteries

That’s for the old, they claim

Bone inflammation,

Stress reactions they say

3 years in a wheelchair

For that I did pay.

One step from a fracture

Bilateral too

Explain that to me!

What should I do?

This is not normal

It all adds up

Where are the answers?

It’s filled my cup!

Hypermobile as well

Let me show you my tricks

My kid’s knee will dislocate

It’s not a simple fix

My list is long,

Some you’ve never heard

Knowledge is lacking

Training has not occurred

Myalgic encephalomyelitis

Can you pronounce that?

Dysautonomia as well

Your experience falls flat.

Epstein barr reactivated

My immune system shot

Low C3, still exploring

But Lupus it’s NOT.

Abnormal gait

My skeleton misaligned

Some bone abnormalities

Organ differences you’ll find

Occasional burst veins

Petechial spots on my skin

Inflammatory bowel disease

I just can’t win!

Numb leg for a year

Sunburn feel on my back

Stabbing toe pain

I wish that one, I lacked!

Bowel spasms that drop me

My bladder too

My esophagus joins that list

What do I do?

Fasciculations and spacisity

Muscle spasms and pain

Internal tremors for years

Yet they can’t explain?!

Hiatal hernia repair

My gallbladder out

Multiple cysts, necrotic appendix

What’s next? I shout

Let’s see, there’s the uterus, that’s gone,

rectocele times two

Interstitial cystitis,

Neurogenic too

Anemia, iron deficiency

Low sodium, low potassium

Low ALP, low CK, low BUN,

No answers, I’ve asked for them!

Low anion gap, low ferritin,

Low vitamin D

My numbers look beautiful

Nothing to see.

My labs were all normal

My CT too

Yet full of IBD

And you never knew

I told you I’m a zebra

I don’t present in the norm

No inflammation in my blood

Based on basic panels, your form.

There are other lab markers that exists

But you’re not in the know

Don’t blame my mind for your ignorance

healthcare is a shit show.

Send me to specialists

Who know rare disease

22 years I’ve been waiting

I’m really displeased

Takes 15 years on average

For those like me

To finally get answers

It’s a simple plea

Our system is broken

Too much time lost on blame

Their ignorance is speaking

When they play their basic game.

You don’t fit in their box

It must be your mind

Without truly looking

There’s nothing to find

How do you fight a system

When your crippled and done

The fatigue is daunting

Sensory overload won

Words coming out backwards

Your memory lacking

Assisted devices for everything

Once sharp now cracking

Brain fog is strong,

Simple things now hard

Held down by this body

My freedom is barred.

If not for me,

Then for my kids sake

What is going on?

This is not fake!

She’s taking advantage of the system

Hypochondria is strong!

She just wants pain meds

How badly they’re wrong.

Somatic symptom disorder

You’re thinking on it too much

It affects me nearly every moment

I’m pained by simple touch!

She’s simply an anxious mind

But it’s only here I get spun

All the gaslighting, accusations

PTSD is no fun!

I’ve been accused me of much

Your judgements off base

I’d love to see your response

If you suffered what I face!

But wait! There’s more! Should I go on?

Nystagmus, ataxia,

vertigo too

Thank God that’s less frequent.

Oh, emphysema! But that’s on you!

Endometriosis, Menorrhagia,

Bilateral labral tears

Gastritis, Bile duct dilation,

Severe abdominal pain in flares

Constant pain in my hips

Endless in my butt and thighs

Hurts to stand, to walk, or sit

What causes this pain to arise?

It’s too rare to exist,

The doctor does boast!

No, it’s not as rare as you think,

Just simply rarely diagnosed

                                                                                Dianne MacKay 4/2/22

Political Medicine

I’ve always known we had issues with our medical system. Over specialization (lacking the ability to see the whole picture), lack up updating current data and going off of antiquated literature, inability to think ‘outside the box’ for those of us that don’t fit in them, and lack of advocacy for those suffering chronic conditions. Bias still exists in the medical field. Patients have had to advocate for themselves, educate their own doctors on conditions misunderstood or conditions most medical professionals are simply unaware of.

But I never expected that we would simply change our medical system to political medicine. Never did I expect that government, big corporations, and a portion of society would accept this change at the expense of the vulnerable and those fighting for body autonomy. Never did I expect so many to go along with it, unquestioned and spew so much hate towards those that know a medical system of ‘the greater good’ would be harmful to apply across the board and be harmful to those of us who are vulnerable.

I’m thankful there are still some good doctors and medical professionals who are standing up for body autonomy as we are not a one size fits all society. It is not possible to be without causing harm to a portion of the population.

Where do we draw the line?  We fight hard enough to be heard by uneducated doctors and society who have no idea of the health conditions that exists among us who have no understanding of the day to day of what we go through and we expect the government and big corporations and society in general can suddenly make those decisions in our best interest? And to stand up for our own bodies, health, and situations is now suddenly ‘harmful’ and ‘unethical’? How did something right become wrong so quickly?

Just Eat The Cookie and Die

It’s amazing to me how many people are willing to sacrifice others for a false sense of security, to make them feel safe. It’s even more amazing when it comes from someone in your own family who has had the time to know your life, your experience, your health issues, your story, and yet they still want you to eat the cookie that could potentially kill you, just to make them feel safe.

The cookie in question would be a cookie that you have a known allergy to, as well as a prior history of eating that cookie and having your health destroyed. Knowing there are many others like myself who have also eaten that cookie and had the same reaction and struggling just to live life with the myriad of conditions and health issues spurned by those damn cookies.

Those cookies destroyed my health. When trying to find out why, no one seemed to care. What makes my genes different? What made people like me respond in the way in which we did? There’s an obvious genetic component involved but no one wants to study the issue. Why? I can only assume, since the manufactures have no real liability, they have no real incentive to research the issue. Studies costs money. There are many many willing participants who’d love to be involved to see what makes us different so we can enjoy a safe cookie like everyone else but we’re the minority and I’ve since learned, we really don’t matter. No one wants to spend the money and they likely don’t want to admit that their cookies can cause that kind of harm in the first place.

For two decades, I’ve brought up these questions. I’ve asked medical personnel. I’ve been silenced, gaslit, and told correlation doesn’t equal causation… Let’s think about that last statement. Correlation doesn’t equal causation. Wow, can that apply to many things but in my cookie case, it almost always seems to apply. We know that only a small number of people have their injuries reported in the first place. This is fact. Even drug reactions are rarely reported, I’ve witnessed that many time. If these reactions are not being reported as they’re supposed to, then we don’t have a legitimate accurate database where we can see how many people had the exact same reaction and how that reaction grew over time. We miss the obvious, that many have had that same response and correlation is looking much more common than otherwise reported. Seeing those numbers would then, ethically prompt more research into the issue. Just like a black box warning applied to meds that were later deemed unsafe for a subset of the population. But cookie injury reporting is one of the least of all reported types of injuries. Again, is it the lack of liability? Why wouldn’t we want a safe alternative for those who can’t digest it?

In becoming injured by those infamous cookies, health declining and disabled, I have become the vulnerable. The vulnerable who can no longer eat of those cookies. It would be harmful to my health and since we don’t know what the mechanism is behind it, we have to assume it’s the entire cookie. Had they researched the issue, maybe we could have pinpointed something in it or understood the way in which my body processes those cookies but again, no one cared enough to investigate the issue. In addition, current cookies now contain an ingredient that I do have a known allergy to. And sadly, I was told by my own family member that I should eat it anyway. Aren’t they the ones who are supposed to eat the cookies to protect me? The ones who can’t? That’s the line we’ve been fed for generations yet that somehow suddenly doesn’t apply? Or is my family member just being toxic and selfish willing to sacrifice another for the impression of saving himself? That’s what catering to the ‘greater good’ does to people. It’s always at the expense of another and I just so found out, I am the other they’re willing to sacrifice. Doesn’t look good on this side of the fence.

Silent Echos

Crying a dozen tears,
collecting puddles along the way
Anguished over lost years
Waking to the same, each day

Feeling trapped, paralyzed with fear
Heavy chains pulled tight
Is there no one to really hear?
I toss and turn throughout the night

A body that won’t comply
An overwhelmed and angry mind
Struggling with the thought of goodbye
Will there be a rainbow that I find?
Or am I lost, lost, only to be left behind… DM 7/5/21

The Sacrificial Greater Good

I’ve been hearing the term, ‘The greater good,’ quite a bit lately. Apparently, it has it’s roots in Utilitarianism.

utilitarianism: the doctrine that actions are right if they are useful or for the benefit of a majority; the doctrine that an action is right insofar as it promotes happiness, and that the greatest happiness of the greatest number should be the guiding principle of conduct. (via our lovely google dictionary).

On paper, it seems right. It often shapes our decisions in life and helps us to make decisions that would benefit the most. But what about those who become the sacrifice for this greater good? That is an often, swept under the rug discussion that can quickly turn ugly if not silenced quickly. I’ve had the unpleasant experience of being the sacrifice more than once in my life and it’s opened my eyes to an uglier side of society that has no room to take a true look at what that looks like. Closing their eyes and shutting down so they don’t have to face the harm that their decision could cause. Is it just their way of protecting themselves and their feelings about the matter rather than facing the ugly truths that exist?

I’ve noticed those that are ‘plugged in’ will have the same lines of thought, words of indoctrination (?), using the same style of language and lingo to justify their viewpoint and leaving no room to think outside that box. It’s a split society in those situations that have painted the picture as either black or white, ignoring the gray that sit in front of them as if it doesn’t exist. They will argue vehemently to defend their position and give you absolutely no room to simply discuss the fall out from that line of thinking. Instead of critical thinking and curious discussion, it’s near immediate ego insulting and name bashing against the one who sits outside the box both in thinking and in experience. Their way is the only way and anything else is pure selfishness.

Yet, life is not black or white. There are sacrifices to the greater good and their voices deserve to be heard. After all, isn’t it my sacrifice that keeps you going? Let’s look at WWII. Some of the most horrific and brilliant doctors and scientists committed some the most outrageous atrocities against mankind. On paper, if you asked anyone, most of society would be disgusted by their actions. But when you boil it down to the finer details, you can excuse them by this thinking of the greater good. Did we not learn much from their discoveries? Did our country not then hire some of those same doctors to keep the studies going? But that’s not something most want to think about or are even aware of. The uglier side of things, swept under the rug and justified by the thinking of the greater good. We simply learned so much, right? I wonder how those poor souls felt being forced to give their lives, their comfort, their humility suffering for the sake of others. How many universities, governments, corporations dipped their hands into the pot of human experimentation, ‘for the greater good,’ before laws were formed to stop the overt practice on human life? Just research the topic and you’ll be surprised how common this was. The people experimented on didn’t have a choice in the matter. That’s an ugly truth that simply is.

It’s easy to rationalize and justify thinking that simply wouldn’t happen again, after all, didn’t those laws come into effect? In the 80’s. We’ve evolved from that kind of behavior, right? No. Tigers don’t change their striped, they simply camouflage themselves much better and push the idea of the greater good, dressing it up in a beautiful wrap and calling it something pretty. Critical thinking and open debate began slipping further and further away from the curriculum taught in schools and universities and group think began. A world wide social experiment with deep effects into the minds of the plugged in. The idea of a different viewpoint becoming an anger inducing division of minds and a black and white scenario with no room for individual thought and discussion. It is ‘the collective’ and the divergent.

Those who’ve become the sacrifice, awakening to the injustices that hide beneath the fabric of this collective thinking of the greater good and the finer details that are hidden even deeper within. It truly explains the immediate silencing and ostracizing of those outside the box. The unplugging from the collective.

The Next School Shooter

Several years ago, a mother in my state wrote an anonymous post about her child being the next school shooter. It took a post like that for a doctor in another state to reach out and help her child. Yet no change took place in Idaho. Our mental health system here is a broken wreck, we know it, they know it, but no one is doing anything about it. It’s been years, yet here we are with the same broken system. A young girl, a 6th grader became the next school shooter. Thankfully for her, no one died. I sit here wondering what help she will truly be given and what changes won’t take place because of it.

I sit here and wonder if my child will be next.

Did you know the state of Idaho does not have ONE anger management class or sessions for our youth? Not one, so they say. My child has actually reached out and asked for help with this anger that comes out of nowhere and rages out of control. He hates it, we hate it, but how do you control it? How do you stop it from unleashing in the first place? Doctors want to throw anti-psychotic after anti-psychotic at them but it does NOTHING to help the child. My child doesn’t do well on meds. Period. We’ve tried so many of there damn drugs but not one has helped. He lives with extreme over the top anxiety and panic attacks and nothing has touched it. It took YEARS to even try a fast acting anxiety med in the first place because they were too concerned with addiction than helping my child.

So my child suffered for so long without help that it’s become out of control and beyond where it needs to be due to lack of help in the beginning when we needed it most. Addiction is more concerning to them than the actual wellbeing of your child NOW. Off label meds are used more often than medications meant for the issue to begin with.

One of the biggest issues with long term drugs is that it can weeks to months to be effective. So they trial a med, fight off the side effects, only to have it be ineffective or cause more problems only to finally stop it and trial another, and another and another, to no avail. At some point the child will refuse meds. And then rage at the worthless system he finds himself under.

The state of Idaho has no real respite for older kids. I am just now learning of one on the east side of our state yet no one had mentioned it to me before. Why don’t we have one in the most populated area of our state? There are plenty of respite ideas for those with young kids but not a damn true respite for our older teens that benefit both the child and the parents. So the government contracted with the Hay’s house. A local shelter in Boise that takes kids. Apparently, paying good money from the government of Idaho to the Hay’s house to provide the needed respite for our kids in the system. Guess what? They denied my kid.

After taking weeks to even try and get someone to call me back and then go through the application process and set up a tour. I simply got a phone call telling me they don’t take kids with autism. They also don’t take kids with health issues even though my son doesn’t have any needed equipment or really any special care beyond, let him rest if he needs to and don’t require physical activity if he’s hurting. So why are they getting funds from the government, likely from us tax payers to provide a service, ON PAPER, that they are refusing to provide? It’s funny and ironic that the court order in my kids case simply says, “keep seeking respite…” Yup, we’ll keep seeking but never find.

And they wonder why kids finally explode. They wonder why suicide rates are high and ever climbing. They wonder why kids take their aggression out as a school shooter. I wonder what help the poor girl didn’t get and how long they battled the system trying to find it before she finally snapped. So what change did this incident bring about? Likely not a damn thing.

Respite for teens should provide a safe place for teens to have both enjoyment and a break from their families while providing a break to the parents as well. If one is suffering, the other will too. So if a kid goes to a place like Hay’s house and can’t even keep his phone or certain personal affects while there, please explain how that is not much different from detention? So even if he did get accepted, I can only imagine the anxiety in the back of my mind worrying about how frustrated my kid would be not having access to his basic personal affects while supposedly getting a break from the household… I honestly don’t think that would provide a real sense of relief, ie, respite. But it would be better than nothing…. until we can one day get real services and respite for our teens. If it’s not too late.

I’m so disgruntled by our system, our state, our health care. They are admittedly reactive and not preventative. But even their reactive measures are subpar, always shoving a square peg into a round hole and not getting results while continuing to try.

I would love to start a non profit and create a teen respite center in our state. A center with input from the very teens who would utilize it. But how do I do that? I’m just a disabled mom with ideas, a lack of education in that area, and very little energy to walk on my own two legs. But we need it. We need it desperately as do thousands of other kids in our state who are suffering like my kid is, just like the parents who struggle and need that break but are too afraid to ask for help or have asked but haven’t been heard. My ideas are endless on this program I’d like to create.

I’d also like to fix the broken juvenile justice/mental health system in our state. A REAL solution that would benefit our children that really does look a lot like common sense but our system is stagnant, apparently slow to change and how does one be the voice of change? I HAVE A SOLUTION!! But my voice travels out and fades away and doesn’t reach the ears of those who might actually be willing to make a difference. How can I be heard? How can I share my ideas that would help our kids in at least two areas where our state has failed? I need legs. I need someone to be those legs to reach the people necessary and then convince them to simply start by listening. Listen to my proposal and lets start working on solutions rather than wait till something even more drastic takes place that finally gets someone’s attention.

Will my kid be next?

Update to this post:

Not long after writing this post, I argued with his current psychiatrist about the state of affairs in our state and his inability to handle treating my son’s anxiety with a simple medication to do just that. He told me they don’t really offer those meds to kids and he didn’t feel comfortable doing so. I clearly let him know how unacceptable that is to me and how he’s only harming my child by withholding a necessary medicine he truly needed. I also told him he needed a real doctor to evaluate his physical health issues as I felt his underlying issue is not so much mental health as it is a physical issue exacerbating it, likely genetic affecting my kid and that we can’t seem to get help to diagnose him. His psych suggested sending him to Seattle’s Children where they have a good comprehensive medical clinic. I told him I would be very interested in that. He then went on to mention another clinic in Utah for mood disorders and medicine resistant kids. I voiced my opinion and told him I would like to go to Seattle’s children. He sent the referral to the mood clinic instead.

Why did he bother asking me or telling me about both places if he had his mind made up and didn’t accept my input? A month later I got a call from the mood center to schedule an appointment for my child. What I found out shocked me to my core. His psychiatrist sent the referral for him to get shock therapy. I don’t know about you, but I’ve researched that and let me tell you, the horrific stories coming out of shock therapy will blow your mind. These kid can come out with serious brain damage and permanent memory loss. So essentially, they wanted to shock the anxiety and depression out of my child rather than investigate the root cause of his physical health issues that affect him in ways that present like mental health. I would never ever risk harming my child or risk changing his personality all to avoid some meltdowns when he cycles through them after feeling trapped in his cage for being stuck without recourses. What kind of doctor orders such a thing without figuring out the health issues affecting him? I was so appalled. We never went back. FYI, the first thing mentioned before attempting such a dangerous procedure is to make sure there are not any physical health issues affecting the patient as well as a list of issues that would be contraindicative of him receiving those treatments which he has several of.

What people fail to understand as they’re simply ignorant to the mysteries of the human body, is that when mental health issues appear in someone, it is always imperative to rule out a physiological cause BEFORE labeling and treating a person with psychotropic drugs. But we’ve gone away from that for a long time now. Pysch meds are handed out like candy. Are there any discussions about the drugs kids are on when those violent encounters do happen? Do we ever talk about the damage those drugs can cause kids? Did you know many of them are not even for kids but adults over 18? And yet they hand them out like candy.

Twenty two years after I first got ill, I finally got diagnosed with a very rare genetic disease. Guess what? This genetic disease can present in kids as a mental health issues when their bodies are not being regulated by the diet that affects them as they don’t break down certain products in the body which builds up and makes them sick. A genetic disease I might have very well passed on to my children as their health symptoms are similar to mine in many ways. And yet, instead of those doctors testing him or looking into these diseases, they rather shock his brain and cause head trauma. Instead of giving a fast acting anxiety med to calm him when he’s feeling panic, they rather give him drugs that caused him harm and do nothing for anxiety. I truly hate our system.

Do I really think my kid would actually be the next shooter? No. But I see how it can happen in our world. I see how lack of real medical help, lack of appropriate prescriptions and a serious lack of services can lead to that very thing. And that’s not even talking about those coming from a troubled background who may also suffer from similar issues but don’t have parents fighting for them like I fight for my son. I feel even worse for them. At least my kid has all the love in the world. He’s also a great kid. He’s intelligent, helpful, intuitive, and brilliant in so many ways. He’s just lacking the proper medical care, the lack of services, and lack of outlets he needs while living with a disabled mom who can’t help him in the ways in which he needs as I’m still seeking help and services for myself as well. He needs a mentor, a physical trainer, someone to be the friend that also handles the adult responsibilities we’ve been unable to consistently provide him due to illness and his father working nearly every day of the week.

We finally found a psychiatrist to evaluate my child who has been worth every bit of the time and travel it takes to get to him. He is brilliant. He also has worked with many kids with rare diseases. He didn’t bat an eye at prescribing the appropriate medication my son needed. He is concerned with the here and now and not some future fear of addiction that holds him back from actually treating my child. He believes me. He also believes absolutely that my son is dealing with a rare disease. And this was before I got diagnosed. He’s been fantastic at signing off on testing for my son. He listens. My son absolutely does well at those appointments. He gets to see the side of my son that I know and not the side of the anxious angry teen that is tired of the medical system and tired of doctors dismissing him and treating him like he doesn’t matter. He looks forward to those appointments and feels respected. Maybe other doctors should take a page from this one’s play book.

In my search to get my son tested and treated for his physical health issues, his prior family doctor refused to write referrals needed for my son. He refused to reevaluate my son’s liver when it showed enlargement on his MRI, completely dismissing that finding and telling us not to worry about it. He’s suffered abdominal pain for nearly 3 years now. FYI, liver involvement is part of the disease I suffer with. It can absolutely be fatal. He dragged his feet in getting him a referral to the university hospital. 4 months of arguing back and forth. He deleted all our medical emails from the system when I complained to management about the behavior and lack of care from this doctor. Isn’t that illegal? Major red flag. He insinuated I was a Munchausen mom and told me to my face that what my son has was NOT a genetic problem and I’d have to come to terms with the fact that his issues were likely all mental health. That was last year, the last time I spoke with him. He was wrong. How sorely wrong and his ignorance has caused harm to my child. And they wonder why my kid hates doctors.

The child I mentioned at the very beginning of this blog who was diagnosed by a doctor out of state, well his mother wrote a blog about her son being the next school shooter. She was desperate and reaching the end of her rope seeking medical help for her child as we seem stuck in a state with very ignorant medical personnel who are not helping our children. I’m positive there are some good ones here, good luck getting in to see them. That mother reached out in the only other way she knew how, venting her frustrations for the world to read and it took that level of desperation for someone to finally listen. Someone who read her post and recognized the symptoms in her child. He finally got diagnosed with a condition that isn’t even rare but our Idaho doctors couldn’t seem to recognize. He finally got the care and help he needed and is doing very well to this day.

I guess in my own way, I felt like I was doing the same in highlighting what a truly broken system we have. But there are also other things people misunderstand. Words and actions are two very different things and context means everything. I had a relative who has no interaction with my child, who lives in a completely different state and based on a conversation from another relative with her own mental health issues, he accused my child of being the next school shooter. He accused me of not doing enough to help my son. He accused me of being a parent who would contribute to causing an act so violent and ugly. Didn’t matter that I showed him a copy of his medical record discussing these issues showing him MY child is being taken care of to the best of my ability AND these conversations are discussed with his doctor. Didn’t matter that MY child doesn’t have the qualities involved in psychopathic behavior. Didn’t matter what I said at all, he simply chose to insert his own beliefs and opinions about my child making accusations and judgements without context, facts, or even truly knowing my kid like I do. He was angry I didn’t send him to shock therapy. He thinks doctors are always right and don’t get it wrong. He doesn’t know the system like I do, our states current lack of programs, the snails pace in getting kids into appropriate doctors, with YEARS, not months waits in between. I’m not asking for judgement. I’m asking for compassion, understanding, and maybe some help. But if you can’t establish a relationship with your own relative and you chose to instead steal items from my child, yes that happened, please don’t come at me with your own misguided opinions of him.

Part of those accusations from my relative was actually due to my kid wanting to seek out euthanasia when he’s old enough to legally do so. Yes, my son has talked about this. Yes, his doctors ARE aware of this. And WHY has my son talked of this? Because he suffers in chronic pain. He suffers with his body not working correctly and dealing with horrible symptoms that LEAD to him being anxious and depressed and overwhelmed because of his PHYSICAL suffering with no answers or appropriate treatment. As I said earlier on, he has a physical health issue being undiagnosed which triggers mental health issues and frustration living a life hindered by these physical issues and being unable to do strenuous tasks which can put him bed for days after. That’s a heavy burden for a teen to deal with. He doesn’t want to end up like me and being disabled and only able to tolerate medical appointments (barely) and then back in bed day in and day out. What kind of life is that? He watches my progression and it kills him inside.

Should he be punished for voicing his thoughts? Are we now the thought police? What is wrong with a child being honest when trying to explain the depth of his suffering? This is the comment that led to the accusations from my family member. Then the recent case of an idiot parent who basically put a gun into her violent child’s hands that led to more accusations from a family member who stooped so low enough to assume I’d be that kind of parent. You can’t imagine the anger I felt from this. This wasn’t coming from a place of concern but from a place of control. I don’t play that. I will defend my child to the moon and back. My kids are my heart and soul, my life. If you think I don’t have their best interest in mind, then you know nothing about me. Nothing.

Our system is set up for failure. Too many fall through the cracks. It’s backwards and broken and does more harm than good in many cases. Lack of programs, lack of providers, specialists, and mental health programs. Gaslighting in the industry and blaming mental health for everything rather than digging dipper and or simply admitting it’s above your paygrade if you can’t figure it out causing harm to patients due to fragile doctor egos.

So much misunderstanding in mental health in general. Words spoken in panic or meltdown that don’t match a person’s behavior during normal times does not mean a child is dangerous or harmful. PDA Autism is completely misunderstood by those who do NOT have children’s with autism. Unless you have experience and knowledge then your opinions are unwarranted, unwanted, and ignorant. Words spoken in meltdown when a child is feeling out of control of his feelings are simply words spoken for shock factor to go to the extreme in their own way of getting others to see, they’ve hit their max, they’re overloaded and it’s time for a time out. This is actually a very COMMON issue with kids on the spectrum and only parents with autistic kiddos understand that struggle. They sure and hell aren’t going to tell you it’s simply a ‘discipline’ problem or their kids are just spoiled. Those are two very completely different things. The problem is those without kids and especially without kids with autism think they know better and feel it’s ok to tell you otherwise when they couldn’t be more wrong. Very wrong. It’s easy to judge. It’s not easy living in my shoes.