It’s mind blowing to know
I have a fatal disease
Without treatment starting
Get it started, please!
Even with treatment
Some don’t respond
And many still progress
That’s not treatment, that’s wrong!
The bigger fear
Will my kids have these genes?
The wait to find out…
They have symptoms, it seems
I told them I was dying
I feel it inside
Too long they dismissed me
I’ve progressed on this ride
Hopeful the treatment
Might stop some decline
But get me in to that center
It’s not your life, it’s mine!
The wait for their results
It’s like standing still
Life in slow motion
Progressively ill
No moving forward
Till we sort this all out
Then maybe I’ll rest
No more questions or doubt
Try to enjoy what’s left
Of this crippled life
Just please not my children
That’s my mental strife.
Dianne MacKay 4/26/2022
tearydawn 